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Personal Story....And A WARNING For Others.....~*WhiteDove*~

  Author:  11211  Category:(Interesting) Created:(4/3/2002 8:14:00 PM)
This post has been Viewed (1921 times)

PLEASE...Take Time To Read This True Story, And Warn Others To Be Careful... And To Always Check Their Medicines Out Very Carefully, By Finding Out The Side Effects That May Come With The Medicine!*

This is by far, the most important story that I have ever submitted to USM. It is written to you, my fellow USM'ERS...after much thought and conviction, and after searching my heart....I feel I have to write it and at least try to warn people, from my experience over 4 months ago. As I sit here now, and try to start from the beginning...Tears are rolling down my face....I have to humble myself as I never have before...to tell you this story...And as I think back over the past 4 months...the humility of it all, comes to me so easy...and the tears continue to show...my broken heart.

As many of you know....I had a fight with cancer...and last year I underwent chemo treatments and 40 radiation treatments. This month will mark 1 year for me since I had the last treatment...and I am still in remission...NO tumors can be found...and with all my heart, I thank God first of all...then all my family and many, many friends at usm, for walking that long road with me. You helped me to win a battle...that I could not have fought alone.

To try to make this short as I can....After all the treatments were finished...the healing process began. The radiation treatments were so severe on me....that for weeks after finishing them....all I could do each day was lay on the bed....and keep cold cloths to the burns that came on the outside of my body. Under my arms and chest...It looked like someone had poured hot oil on me. It was horrible, and the stench of the burnt flesh, was overwhelming, and I would constantly get sick and throw up from the smell. I know this isn't pleasant to read...but I have to tell you the extent of the burns, for you to understand why I was on so many medicines.

The radiation and chemo caused so much damage inside me...that when I started healing...my throat down to my stomach seemed like it was closing up...and the burns inside were healing and of course leaving scars. The pain by December of 2001 was getting more and more intense...and on December 30th, I was admitted to the hospital where I would stay for the next 11 days....undergoing minor surgeries to try to fix all the problems.

The first day I was admitted, I was placed on a Morphine drip pump...and I was started out at 12ml, with a boltist I was allowed to get every 5 minutes...this means I could give myself and extra dose besides the 12ml, that I was already getting. Needless to say...I was in a daze at times....but the pain would get so intense, that sometimes I didn't feel like I was getting any pain medicine. During the first 2 days, I was taking the regular meds that I had been taking at home...and the Doctors had added more for me to start on while in the hospital. This is where the trouble started!!!

My daughter, Tracy....Known on USM as Fallinstar....summed it up beter than anyone. She said...."I sit with you the day you went into the hospital, and left that night and worked the next day....and then I came back to stay the night with you...and when I walked into the room, mom wasn't mom anymore...she was crazy as a loon"....

To try to make this shorter....Let me just sum up what happened. The first day I was put on the morphine drip...also since I seemed somewhat depressed...They put me on a medicine called "SEROQUEL"....PLEASE remember that name!!!! Anyone that knows me...knows that I am a happy person all the time no matter what...but I was a little layed back because of all the pain...but as far as being depressed...NO, I wasn't. Anyway, to get the full picture of this drug...Look it up on the internet...and note all the terrible side effects that are listed with it. This is where my humbling experience comes in....EACH side effect that is listed....I had it. There were times...most of the time...I didn't even know who I was. I turned on my family and friends...and I was constantly hallucinating, I had abnormal thinking...And I stayed confused for a little over 3 months.

When I left the hospital, I came home with the morphine pump...which is like a little purse, and I carry it on my shoulder...and I came home getting 6ml's an hour plus I still could give myself and extra dose every 5 minutes. I also came home with the pill form of SEROQUEL. I was taking 4 pills a day....and they were driving me completely out of my mind. Nobody could figure out what had happened...except my husband and daughter Tracy...they both decided it was one of the med's that was doing me this way...but which one...I was taking 11 different kinds, besides the morphine. They felt helpless...and over the three months...they had to watch me like a baby. The nurses came to our house once a week to check me and change the needle from the pump....and they were good friends of ours...and they too could see me and the condition I was in and it was getting worse...and they too felt helpless.

I think of all the prayers that were constantly going up for me....and have been since day 1 of the cancer. The people here at usm, have never forgotten me...and often I get a message telling me, I am still in their thoughts and prayers. On March 3 at exactly 4am....my husband was sitting in bed with me, and begging me to lay down and try to rest just a few minutes....I was going 24-7 everyday, and would survive on a 10 minute nap here and there. He spoke to me these words and I will never forget them...He said Phyllis...you believe in God...and you have always said he was there anytime you need him...if you believe in him, why don't you call out to him, and ask him to help you. I cross my heart and raise my right hand....This is the HONEST TRUTH.... when he told me that, it was like all of a sudden I came to myself and I started crying...and I said "If you don't get me some help I am going to die"...I told him I couldn't go on like this...he jumped up in bed and said..."Phyllis, do you know what you are talking about...do you know what is happening to you" and I said yes I know where I am and what is going on"....and he said it has to be the medicine that is causing this...and then I said "If it is, I know which one it is"....We then got out of bed and come to the computer and looked it up on the internet...and there it was....black and white...SEROQUEL.

I had been crazy for three months...completely out of my mind at times....and it was like all of a sudden I had sobered up, and was alert. On that day...I stoped all my medicine I took by mouth except some meds for acid reflux. I stoped cold turkey on all the rest of it. It took me over 3 weeks to get to where i am right now...I feel like I am 90 per cent back to normal...with 10 percent still to go. I cannot remember hardly anything during January and February...they tell me things and I try to put them together...but I have lost 2 months...that I don't think I will ever get back.

Let me just tell you a few things I did to show you how awful this drug is and what it done to me. I was obsessed with fire for some reason...and 3 times I set my gown on fire and it was starting to flame before it was put out...I burned spots in the carpet, so many that our carpet will have to be replaced. I burned my clothes...and it always hit me the hardest at night, according to my family. I would not go to sleep and they took turns sitting with me and watching me, to make sure I didnt hurt myself or them. I cut the IV tube into with scissors because I couldn't get my gown off...so I cut the gown and the cord into...I have a port a cath in my chest...and the needle goes in the port and the tubing runs to the pump....the little tube that runs from the port inside goes directly to the artery (sp) that leads to my heart. When I cut it into I reached up and clamped it off just above where I had cut it. They now tell me if one air bubble had of went thru it...it would have killed me. Another time I burned it and my daughter got it clamped off just in time.

These are only a few of the horrible things that I done...this is why the tears are falling and makes me feel humble, at the very thought that I am still alive. I treated my husband and girls terrible during that time...and altho they have told me some things...I know there are many more things I did, that they are holding from me.

This Is TOO Long...My point of this whole story is this....IF you know anyone that is on this drug....PLEASE, PLEASE...check the side effects...and make sure that they really need this medicine. Its too powerful, for just a minor case of depression....and it almost took my life...I was dying a slow, horrible death...PLEASE...MAKE SURE YOU KNOW ALL THE SIDE EFFECTS OF ANY MEDICINE YOU TAKE...ASK QUESTIONS...GO ON THE NET, AND READ EVERYTHING YOU CAN FIND OUT ABOUT IT...PLEASE....NO MATTER HOW MILD YOU MAY THINK IT IS, AND YOU MAY THINK IT SAFE...JUST FOR THE 1% IT MIGHT NOT BE SAFE FOR YOU....CHECK IT OUT GOOD BEFORE YOU TAKE IT. I just took whatever they gave me, and didn't question it....and it almost ruined my life, and I feel like if I hadn't of got of it when I did....I would have died from it. THE GOOD NEWS IS....I am being weaned off the morphine now ...1ml per week....tomorrow I go down to 1ml an hour, and then the next Thursday I am free from the morphine pump...and I am feeling stronger and healthier each day. I know this is long...but I have to try and warn anyone that will listen...to be safe about their med's...and not solely trust in the doctors...but know what you are taking, and make sure you need it. God Bless Each Of You, and as always...I send you my love and appreciation for each and every thing that you have done for me over the past year.

With My Heart and Love!!!!! WhiteDove!*

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Date: 4/3/2002 8:17:00 PM  From Authorid: 40979    oh my...i hope yuor better and praise the Lord your healed  
Date: 4/3/2002 8:25:00 PM  From Authorid: 46800    First, I applaude you for getting better Second, for getting on here to tell us about your story, I read every line of it. Third, for giving us the courage and the strength to believe in ourselves, GOD BLESS YOU AND EVERY FAMILY MEMBER!!!!CARDS  
Date: 4/3/2002 8:26:00 PM  From Authorid: 47699    I think this is the most important post I have ever read here by anyone. Thank you for the warning! We're praying for your continued recovery. Take care, my dear friend.  
Date: 4/3/2002 8:30:00 PM  From Authorid: 20921    OH my Goodness Whitedove!! You ahve been through so much! But I am so glad God has helped you through this and like your husband said he is always there for you! I know it took a lot of courage to post this, I really admire you for that.......  
Date: 4/3/2002 8:30:00 PM  ( From Author ) From Authorid: 11211    I keep thinking 3 months...actually it was from December 30 until March the 3rd...the past 3-4 weeks I have been healing from it, as it is still leaving my system. I have been told it would take up to 8 weeks to completely get out of my system...I'm not sure about that...but like I said I am almost back to my normal self....anyway my mind is...I am still having some trouble walking steady at times...and having shaking spells...but for the most part I am on my way out of this ....I'm still not taking any med's except for the acid reflux....and the morphine...which thankfully I will be rid of on April 11.  
Date: 4/3/2002 8:45:00 PM  From Authorid: 4883    WhiteDove this certainly explains why you have been gone and my heart goes out to you...You have always been USMs ambassador of Love... Its so good to see you back... Your message here is so important, learn about the meds talk with the doctor and take control of your treatment... Not all of us react the same to certain drugs and some of us have terrible reactions like you have mentioned... Thank God you are improving... I have much to relate to you but I will do that by PM... Godspeed WhiteDove... Love ~ Jay ~  
Date: 4/3/2002 8:50:00 PM  From Authorid: 31255    Wow, thats incredibly scary! This post has so much in it that we could all take out of it. I am just happy you are doing better and I hope you heal quickly. I will keep you in my prayers. Thanks so much for the warning, I shall keep that in the back of my mind for future reference. I do agree with you too, everyone should be double checking the side effects of the medicine they take. Doctors are human and make mistakes too. *hugs*  
Date: 4/3/2002 8:51:00 PM  From Authorid: 12341    My dearest friend, I know very well the devastation that comes from some drugs, you have written probably the most powerful and courageous post I have ever read, once again the love and concern you have for others is so freely given and shown here, many would remain silent, I truly doubt I would ever have your strength and courage. You havegiven me personally more hope and faith, more inspiration than I can ever write with words, you are and will always be a dear friend whose love and understanding I have felt with my heart even through you have had much to face in your own life, always the light from your heart and soul been constant for your family and friends. You will always remain in my HEART, A DEAR and LOVED FRIEND, in my PRAYERS, and I know and believe our paths will always cross. All my love to you my friend, and many Blesings for the love and compassion in your heart. May God Always Bless You.  
Date: 4/3/2002 9:07:00 PM  From Authorid: 16671    White Dove, my heart goes out to you. NOT once did you tell us these things, You just took your pain and your suffering in stride and
STILL you came on USM from time to time and gave others comfort. YOU my friend are a strong strong person so I know this has to be a terrible medicine to make such a change in you. I'll tell ya, I've been scared of meds since I had to have medicine to get my heart going again after an allergic reaction to pennicillian. EVERYTHING, rather its from the store or the doctor, I look on the internet first and find out all about it. What pills may not mix with it and even then IF I"M STILL in doubt I will call the pharmacy and talk to someone there. Your talking to someone that has a panic attack if she smells bleach too strong. Thanks for sharing this with us, I know it was hard to do for you, May the Lord Bless you for opening your heart and your life to us in this manner as I KNOW that you have probably saved someone a lot of pain and suffering because of your sharing what this awful med did to you. Hugs and Loves. Love deb
  
Date: 4/3/2002 9:18:00 PM  From Authorid: 11341    White Dove, I dont know what to say, really I dont. I am so sorry for you and your family for everything you all have been thru. You are here, you ARE a fighter, you are a friend. You are an earth angel looking out for others. Thank You for this post.  
Date: 4/3/2002 9:27:00 PM  From Authorid: 35160    omg sweety, i am so sorry u have had 2 go through this. and i ty so much 4 telling us about ur ordeal, so others can learn from this. u r such a brave woman. and ur so lucky , all my love and and all my thoughts go out 2 u 4 a complete recovery. 8^) huggs shay  
Date: 4/3/2002 10:47:00 PM  From Authorid: 3263    Wow. What a tremendous story, you have endured so much. Medications can be VERY scary, can cause more damage than fix things. Maybe that's why I am rather reluctant to take meds; kinda hard seeing that I work at a medical clinic. I am so glad to hear that you have survived your battles, what does not kill you only makes you stronger. Thank you for posting this.  
Date: 4/4/2002 2:30:00 AM  From Authorid: 3321    Oh my goodness White Dove...I don't even know what to say. It angers me that they gave you this drug and didn't have the decency to see what it was doing to...But...we are all beter for it, I suppose. Looking on the bright side-we still have you, and you...you know what you mean to me, and I hope everyone else does too-that you are inspiring and strong, and when I think about you I know there is so much that I can accomplish because you got through everything you have.  
Date: 4/4/2002 5:52:00 AM  From Authorid: 15228    WhiteDove, thank you so much for posting this. It is very important to know the side effects of the drugs we are taking, thank God for the internet cause docs don't usually share that sort of information. I had an experience with a med called Dilantin, I was on if for two years and I was a zombie for that entire time, lost 30 pounds, I didn't want to kill myself, but I did wish I were dead. As soon as I went off of that drug i put 15 pounds on in a month and felt like I was alive again. It is also very important to check how drugs interact with each other, something I always ask my pharmicist now that I'm on a different med that works extremely well for me..  
Date: 4/4/2002 5:59:00 AM  ( From Author ) From Authorid: 11211    Sir Phae...Thank You My special friend. I would love to hear from you and anyone else that would like to talk about this. I left out so many things, that are so embarrassing and humilating (sp) to me. If I could go to the full extreme and put everything on here....it would be almost unbelieveable....especially to those of you who know me and know my personality. If anyone has any questions and would like to know more...feel free to eamil me or pm me...I will be more than happy to talk to you and answer any questions you have. My email is pjsmith23@hotmail.com....or I will answer your questions on this post either way. PLEASE...trust me, when I say....I didn't write this post to bring attention to myself...I felt as if I owed it to my friends and family and to anyone that this might touch and make them stop and take notice to what they are putting into their bodies. Thank You again Sir Phae...I owe you alot...you have walked many miles with me over the past year...with your love, support, prayers and encouragement. Thank You dear friend...I love you dearly.....  
Date: 4/4/2002 6:08:00 AM  ( From Author ) From Authorid: 11211    Toodles you are so right...doctors are human and they do make mistakes....I have one of the best oncologist's (sp) in the world...he is a jewel to me...and he will sit with you and talk for as long as you want to talk when you have an appointment with him. He never tries to rush you, but he will talk as long as you need to. I have been in his office at least twice, where he has sit with me for over 2 hours at a time. When its time to go see him for a checkup...you always hope you get the first appointment...because he spends that much time with his other patients as well. Thank you Toodles and I send you my love...  
Date: 4/4/2002 6:15:00 AM  ( From Author ) From Authorid: 11211    Shadow Ghost...What can I say to you. The words my heart wants to say to you are so loving and sincere...that my lips can't comprehend them. You are a very dear friend, and I am a very blessed person because of you. Thank You dear Friend for everything...You helped me to fight the hardest battle I have ever fought in my life...and we won that battle. Thank You for always being there on the front line with me, day after day. I love you dearly...you are precious to me. FirstBorn...It sure sound like you are on the right tract with your meds...I hope and pray that others will learn from this...and check out every detail of their meds just like you do. I believe there is a reason for everything that happens in our life....I can't see the reason now clearly...but I will try and tell anyone who wants to listen...to take control of your meds...and dont let them control you. I love you dear friend...and thank you too for being on that front line with me...  
Date: 4/4/2002 6:23:00 AM  ( From Author ) From Authorid: 11211    DMK...SpookyGal...Dark Crow...Thank you so very much for reading and leaving your comments...I appreciate it with all my heart. Help me to warn others that you may know...who are taking alot of med's and taking for granted that they may not be the right one for them...or may be mixing badly with other med's they are taking. It is scarey...and as I try to find some closeure to Jan, and Feb....I know in my heart I never will. If something comes back to me...just a tiny little detail I will remember...I take it to the limit and try to find out when this happened, and try to connect it with a date....my husband or daughter will say...well this did happen and they will tell me a little bit more about it...I know they are protecting me now from knowing everything I did...and I know that right now it is for the best. By the way...the obsession I had with fire was gone the day after I stopped taking the medicine....thats how fast it worked.  
Date: 4/4/2002 6:27:00 AM  From Authorid: 21155    White Dove, I am so sorry for all that you've had to suffer through and continue to keep you in my prayers as you make your way down the road of recovery, and praise and thank him that you were able to make it through these horrific ordeals and not only made it through but survived them, and now have yourself and your future with your loved ones back!! Thank you so much for sharing your suffering and struggles with all of us so that we or someone we love can avoid going through the same awful experience that you have lived through, and thank you too for your courage, strength, and for caring so much about others that you shared some of your pains with us in an effort to prevent some others from possibly going through the same or a similar ordeal as you have had to endure. Much love, hugs, kisses, and the very best of luck, hopes, and wishes your way and to ALL! -KQ a.k.a.  
Date: 4/4/2002 6:28:00 AM  ( From Author ) From Authorid: 11211    Persephone...you know how much I love you and what you mean to me....you have your own place in my heart...and nobody can ever take that place away. I have felt your love and support since day 1 and i still feel it now...how can i ever thank you...I send to you a heart full of love...and thank you again and again, for being my friend. I love you.....Kelly, you have a story to tell too...i'm so glad that you put this down here...I know that many people take this med that you are talking about...so hopefully someone will read this, and will find help from your comment...thank you again, and I send you my love...  
Date: 4/4/2002 6:32:00 AM  ( From Author ) From Authorid: 11211    Thank You KQ...I have seen your support and love for me, many many times over this past year...and I thank you with all my heart, for standing with me each and every day....I want the people who read this to just push WhiteDove aside...and see the real meaning of this post, as you and the others have seen. I just hope and pray that others will read this, and maybe just maybe get some help from my story and the comments from you and others as well. love to you dear friend...  
Date: 4/4/2002 6:35:00 AM  From Authorid: 15394    Wow, how great you are doing better!! I find it amazing that they are finding that drugs effect other areas of bodies/brains that have nothing to do with what the drug is taken for... they finding out new stuff everyday... Thanks so much for sharing your information, and Thank the Powers that BE for your ever-better recovery!!  
Date: 4/4/2002 6:44:00 AM  From Authorid: 609    WOW you are not only brave for sharing this but very lucky. Don't feel badly about anything during that time tho, it was not you acting. I totaly agree with you that we are far to compliant with Doctors and we have to be more responsible for what we allow others to put in our bodies. I am so glad you are recovering and YAY on your remission. Your story has so many good messages within it but the best is that you are comming out of this better than before. Congrats again, you are very very blessesed! ;)  
Date: 4/4/2002 6:47:00 AM  From Authorid: 19092    Hello my friend, it is good to have you with us and like you have always done, you have brought a message from your heart and out of love. I think of you often and have desired for your return many months. I thank God that you have come through this and are getting better. I shall continue to lift you up to our Lord in prayer. **King puts arms around his friend**  
Date: 4/4/2002 10:45:00 AM  From Authorid: 3648    Hello Whitedove, oh wow you have been through so much, my heart goes out to you big time. I'm rather speechless here...You are such a brave lady...I will continue praying for your well being....I know God walks with you....may you always feel his great arms around you sweetie...God bless you.....*hugs*  
Date: 4/4/2002 1:58:00 PM  ( From Author ) From Authorid: 11211    King, thank you for the arm around me and the shoulder you are always willing to lend me, and anyone else who needs it. You are precious to me...and I thank God for you and the many prayers you have prayed for me. I can witness to anyone who may doubt the love of God....When you are to a point that you can't pray, and even you don't think about God, or maybe know he cares...I can assure anyone now, who may ever doubt...That you might let go of God's strong hand...but he will not let go of yours...He was with me the whole time, and brought me through this...and I know when I couldnt pray and didnt want to pray...that others like you were holding me up in prayer, and those prayers were answered once again...With all my heart...Thank You King for being my friend and for each and every time you whispered my name to our Lord. Sending you a big hug and a thousand thank you's. Grey Eyed Girl...What I just said to King goes for you too....and the many others at usm...like you who lifted my name up in prayer...When I was as low as I have ever been in my life...you didnt forget me...but stood with me in love and prayers and I will forever cherish you and will never forget what you all have done for me. I love you dearly....  
Date: 4/4/2002 2:14:00 PM  From Authorid: 12835    WhiteDove, my friend, I just sent you a personal....  
Date: 4/5/2002 7:19:00 AM  From Authorid: 19586    I am saying a prayer for you and your fight that you have gone through. I just wanted to add, not only do some drugs have major side effects, but when they are mixed with other drugs it magnifies their effects. I cant answer if that was part of what was going on with you, because I dont know what else you were on. But WHENEVER a person is given a medication, you have the right to know what side effects to look for! Anytime you feel odd, or your family notices a change make sure someone contacts your doctor. A lot of drugs have many side effects. Just remember to be knowledgeable of any medications you take.....  
Date: 4/5/2002 3:44:00 PM  ( From Author ) From Authorid: 11211    I got it Pete, and returned you a message. If I still have the meds that I was taking during that time period, I will list them for you. I really feel that all the other meds did add to the situation...but the second day on Seroquel...I was completely out of my mind, according to Tracy. It scary to say the least...but from this post one person may have gotten some help for a family member of theirs who is on this drug, and is going through some of the same things I did...so at least If this has helped that family and that one person...then it has been worth it. My only regret is that more people didnt read it...I know there has to be others that need to be warned. My heartfelt thanks to all of you that read and responded....I send you my love always....Phyllis.  
Date: 4/5/2002 6:40:00 PM  From Authorid: 39887    I am so sorry for what you have been through and your family too. It took great courage to write this I am sure and it is very much appreciated. Too often we just take what the doctor prescribes and ask no questions about the side affects. I have a friend who lost a leg and was on the morphine, he was tripped out by it and was getting addicted. Thank you for sharing your story. I hope you can live a long and happy life and never experience anything like this again.  
Date: 4/5/2002 9:50:00 PM  From Authorid: 3642    Hugs To You white dove and many Blessings ...May god hand Be forever protecting You ..we have missed You and I wanted To tellYou how you have inpacted our lifes with love i hope you Have it returned ten fold Gods speed my friend  
Date: 4/8/2002 5:02:00 PM  ( From Author ) From Authorid: 11211    Busy Bee, Thank You for reading and leaving a comment...also for sharing the story about your friend. I hope others are more careful than I was, and always know the side affects. KeepSake, My Precious....You are one of the most beautiful people in this world....your words always show your kind, sweet and Loving Heart. God Bless you always and keep you safely in his hands....I love you dearly...  
Date: 7/8/2002 11:17:00 AM  From Authorid: 12806    Bless your beautiful heart Phyllis, God was definitely with you and your family.... I have a story about some medicine side effects concerning my son. I think I will post it now.......  
Date: 6/18/2005 8:57:00 PM  From Authorid: 16376    I got this off the random stories button. You had such a struggle hear, I am glad you are no longer in pain but I miss you anways, God bless,  

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